{"id":8,"date":"2015-07-20T11:53:52","date_gmt":"2015-07-20T11:53:52","guid":{"rendered":"http:\/\/kidsplanet.ancorathemes.com\/?page_id=8"},"modified":"2020-12-10T04:50:36","modified_gmt":"2020-12-10T04:50:36","slug":"kids-chronic-kidney-disease-ckd","status":"publish","type":"page","link":"https:\/\/navkids2.com.au\/","title":{"rendered":"Navkids – Navigating Better Care"},"content":{"rendered":"

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NAVKIDS2<\/sup> PROGRAM<\/span><\/h3><\/div>
[vc_column_text css=”.vc_custom_1566264250118{margin-bottom: 35px !important;}”]The NAVKIDS2<\/sup> research program is aimed at providing better healthcare for children with chronic kidney disease<\/span>[\/vc_column_text]<\/div>
More about us<\/a><\/div><\/div><\/div>[vc_raw_html el_class=”video-block”]JTNDdmlkZW8lMjBjb250cm9scyUyMHByZWxvYWQlM0QlMjJtZXRhZGF0YSUyMiUyMG5hbWUlM0QlMjJtZWRpYSUyMiUzRSUzQ3NvdXJjZSUyMHNyYyUzRCUyMmh0dHBzJTNBJTJGJTJGd3d3Lm5hdmtpZHMyLmNvbS5hdSUyRndwLWNvbnRlbnQlMkZ1cGxvYWRzJTJGMjAyMCUyRjEyJTJGTmF2a2lkcy13ZWIubXA0JTIyJTIwdHlwZSUzRCUyMnZpZGVvJTJGbXA0JTIyJTNFJTNDJTJGdmlkZW8lM0U=[\/vc_raw_html][\/vc_column][\/vc_row][vc_row][vc_column css=”.vc_custom_1438258935637{background-color: #f6f6f6 !important;}”]
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\n\t\t\t\t<\/span>About Navkids\u00b2<\/span><\/a>\t\t\t<\/div>\n\t\t<\/div>
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\n\t\t\t\t<\/span>Contact us<\/span><\/a>\t\t\t<\/div>\n\t\t<\/div><\/div><\/div><\/div>[\/vc_column][\/vc_row][vc_row][vc_column css=”.vc_custom_1565316791936{background-image: url(https:\/\/www.navkids2.com.au\/wp-content\/uploads\/2019\/08\/bg_purple.jpg?id=1749) !important;}”]

JOIN US!<\/h1><\/div>
Your participation can assist in improving understanding of your child\u2019s chronic disease. Join now to be involved in the survey and future projects.<\/h5><\/div>
get involved<\/a><\/div><\/div><\/div>[\/vc_column][\/vc_row][vc_row parallax=”content-moving” parallax_image=”2106″ parallax_speed_bg=”3″][vc_column]
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<\/div><\/div>register now<\/a><\/div><\/div><\/div><\/div>[\/vc_column][\/vc_row][vc_row parallax=”content-moving” parallax_image=”1870″][vc_column css=”.vc_custom_1565316802437{background-image: url(https:\/\/www.navkids2.com.au\/wp-content\/uploads\/2019\/08\/bg_purple.jpg?id=1749) !important;}”]
stories<\/h6>
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A lot of the government services\u2014getting support\u2014respite or things like that\u2014they are so hard to get and they take so long, you give up. At the moment, I have given up on just about all of them because it takes so much energy out of you and it is so upsetting. So you just learn to deal without them. Now I haven\u2019t been bothered to call them for the past two years because whenever you call them, they just always have an excuse, never return your calls\u2014you\u2019re not entitled because there\u2019s people who are worse than you. It\u2019s just not worth it so we just don\u2019t bother.<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t
Mother, 30s<\/span><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>
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We did eventually get a. I think it was called special childcare benefit, just where your childcare fees are covered for I think it\u2019s 12 or 13 weeks. But things like that, we weren\u2019t ever aware of until another nurse told us about them. Because she had been in a situation where she\u2019d had an unwell child as well and needed to do that. But those things, there seems to be a lot of benefits and things that you aren\u2019t told about that \u2014 because that really helped at a time that we really needed it, because yeah going from paying say $120 a week for just preschool and day care to having three months of it paid for.<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t
Mother, 20s<\/span><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>
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We were completely unaware of an illness like this. Making sense of the diagnosis of the disease and managing the disease seemed like a monumental task. I was a new mother in a new country faced with what was an impossibly difficult situation with no support at all. It would have made a huge difference to have someone making sense of the disease, the medication regime, the side effects and the prognosis. We were not aware of the benefits and support that is available for patients like us, and were too overwhelmed and exhausted to go looking for information. In fact we started accessing car parking benefits after 18 years at the hospital.<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t
Mother, 40s<\/span><\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t<\/div><\/div><\/div><\/div>[\/vc_column][\/vc_row][vc_row disable_element=”yes”][vc_column]
latest news<\/h6>
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\n\t\t\t\t\t\t\"Having<\/a>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t
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Having CKD is overwhelming and the journey can be full of turns and detours<\/a><\/h4>\n \t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\tJuly 6, 2020<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\tby Nav Kids<\/a><\/span>\n\t\t\t\t\t\t\t\t\tin News<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\t\t0<\/span><\/a>\n\t\t1<\/span><\/a>\n\t<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\n\n\t\t\t\t<\/div>\t\t\t\t\n\t\t\t<\/div>\t\n\t\t<\/div>\t\t\t\t\t\t\n\t\t\t\t
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\n\t\t\t\t\t\t\"Study<\/a>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t
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Study Update<\/a><\/h4>\n \t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\tJune 1, 2020<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\tby ckdadmin<\/a><\/span>\n\t\t\t\t\t\t\t\t\tin News<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\t\t0<\/span><\/a>\n\t\t0<\/span><\/a>\n\t<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\n\n\t\t\t\t<\/div>\t\t\t\t\n\t\t\t<\/div>\t\n\t\t<\/div>\t\t\t\t\t\t\n\t\t\t\t
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\n\t\t\t\t\t\t\"World<\/a>\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\n\t\t\t\t
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World Kidney Day<\/a><\/h4>\n \t\t\t\t\t\t
\n\t\t\t\t\t\t\t\t\tMarch 11, 2020<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\tby ckdadmin<\/a><\/span>\n\t\t\t\t\t\t\t\t\tin News<\/a><\/span>\n\t\t\t\t\t\t\t\t\t\t\t0<\/span><\/a>\n\t\t3<\/span><\/a>\n\t<\/span>\n\t\t\t\t\t\t\t\t<\/div>\n\n\n\t\t\t\t<\/div>\t\t\t\t\n\t\t\t<\/div>\t\n\t\t<\/div>\t\t\t\t\t\t\n\t\t<\/div><\/div>More news<\/a><\/div>[\/vc_column][\/vc_row]<\/p>\n<\/section>","protected":false},"excerpt":{"rendered":"

[vc_row][vc_column][vc_raw_html el_class=”video-block”]JTNDdmlkZW8lMjBjb250cm9scyUyMHByZWxvYWQlM0QlMjJtZXRhZGF0YSUyMiUyMG5hbWUlM0QlMjJtZWRpYSUyMiUzRSUzQ3NvdXJjZSUyMHNyYyUzRCUyMmh0dHBzJTNBJTJGJTJGd3d3Lm5hdmtpZHMyLmNvbS5hdSUyRndwLWNvbnRlbnQlMkZ1cGxvYWRzJTJGMjAyMCUyRjEyJTJGTmF2a2lkcy13ZWIubXA0JTIyJTIwdHlwZSUzRCUyMnZpZGVvJTJGbXA0JTIyJTNFJTNDJTJGdmlkZW8lM0U=[\/vc_raw_html][\/vc_column][\/vc_row][vc_row][vc_column css=”.vc_custom_1438258935637{background-color: #f6f6f6 !important;}”][\/vc_column][\/vc_row][vc_row][vc_column css=”.vc_custom_1565316791936{background-image: url(https:\/\/www.navkids2.com.au\/wp-content\/uploads\/2019\/08\/bg_purple.jpg?id=1749) !important;}”][\/vc_column][\/vc_row][vc_row parallax=”content-moving” parallax_image=”2106″ parallax_speed_bg=”3″][vc_column][\/vc_column][\/vc_row][vc_row full_width=”stretch_row” parallax=”content-moving” parallax_image=”1870″ disable_element=”yes”][vc_column][\/vc_column][\/vc_row][vc_row parallax=”content-moving” parallax_image=”1870″][vc_column css=”.vc_custom_1565316802437{background-image: url(https:\/\/www.navkids2.com.au\/wp-content\/uploads\/2019\/08\/bg_purple.jpg?id=1749) !important;}”][\/vc_column][\/vc_row][vc_row disable_element=”yes”][vc_column][\/vc_column][\/vc_row]<\/p>\n","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"open","template":"","meta":{"footnotes":""},"aioseo_notices":[],"_links":{"self":[{"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/pages\/8"}],"collection":[{"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/comments?post=8"}],"version-history":[{"count":0,"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/pages\/8\/revisions"}],"wp:attachment":[{"href":"https:\/\/navkids2.com.au\/wp-json\/wp\/v2\/media?parent=8"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}